Milestones and Tombstones – Downingtown Screening

The road to Downingtown West High School goes through Frazier and right past Haym Solomon Memorial Park.  This is where Simon is buried.  This post is really about the success of our recent screening, but this screening revealed an ongoing struggle of mine – what is expected of me, the...

Continue reading

It's a Rare Occurrence . . . Until

Following the death of Jeffrey Lee in the Philadelphia Marathon, we sent this Op Ed to the Inquirer.  You can read it below or see it on their website. ‘It’s a rare occurrence.” That’s a comforting notion until it happens to your child. Our child, Simon, was 3 months old...

Continue reading

New Recommendation: Screen Kids for Cholesterol

The National Institute of Health – Heart, Lung and Blood Institute – recommends that kids should get their cholesterol checked.  This is the same organization that studies and considers sudden cardiac arrest and death of student athletes.  I am encouraged by this recommendation because it focuses attention on the hearts...

Continue reading

WKRP in Cincinnati

The only thing missing at our heart screening today was WKRP.  The four major networks were there.  One hundred students were there.  Most of the Sycamore water polo team was there.  About thirty professionals from Cincinnati Children’s Hospital and Suburban Pediatrics were there.   Jose’s mother, Luisa, was there.  All of...

Continue reading

PA Lawmakers Focus on Student Athletes

Kudos to the PA Senate (and previously the PA House) for passing the Safety in Youth Sports Act (SB 200).  They join 30 other states that have passed this type of legislation.  The bill is now waiting to be signed by the Governor. Over the last few years, there has been a...

Continue reading

What Do You Get . . . .

What do you get a seven year old boy for his birthday?  Where do you have the party?  Who do you invite? These are the questions that I expected to be grappling with on a day like today – Simon’s birthday.  For me, and I can only speak for me...

Continue reading

A Picture is Worth . . .

Last night was Bubby’s 65th birthday party.  I flew down to Tampa to surprise her.  You wouldn’t have made the trip.  Mom, Sally and Jaden stayed home.  Aunt Meredith put together a great video.  Of course, you were in it. As we strolled down memory lane, looking at pictures from...

Continue reading

Pulse Ox – What It Means to Simon's Fund

A Federal Government Advisory Committee is urging the use of this test.  Two Governors (Maryland and New Jersey) recently signed laws mandating the use of this test.  Clearly, the hearts of newborns are front of mind. These laws require that a Pulse Ox test be performed on all newborns.  The test...

Continue reading

Harry Potter Screening Did Not Save Lives

Thousands of kids came out for the Harry Potter screening this past week.  While they were all entertained, none of them left any healthier or safer.  You’ll have to come to a Simon’s Fund heart screening for that where 1 out of every 100 kids will discover a heart condition. It may...

Continue reading

Is it possible that cats receive better health care than our children?

I took my cat to the veterinary today to have his teeth cleaned (yeah what of it) and an amazing thing happened while reading the informative pamphlet regarding the dental package.  At the Ardmore Animal Hospital, they complete a physical examination on the morning of the scheduled procedure.  From the...

Continue reading