Every year, 7,000 - 10,000 children die from sudden cardiac arrest (SCA). That means that almost 20 children drop dead every day. On January 24, 2005, it was our child.
What is Sudden Cardiac Arrest?
Sudden cardiac arrest (SCA) is a condition in which the heartbeat stops abruptly and unexpectedly. When this happens, blood stops pumping and the person collapses. Usually, SCA this is caused by an abnormality in the heart's electrical system, which stems from a structural or electrical defect.
Cardiomyopathy is the most prevalent condition related to a structural heart defect. The heart is too big and cannot work properly. Long QT Syndrome is the most prevalent condition related to an electrical heart defect. This causes the heart to get out of its normal rhythm.
What are the Symptoms?
Fainting (syncope) and shortness of breath is the most common symptom and can be fatal. Fainting usually occurs during or immediately after physical activity, or as a result of emotional excitement/distress/surprise, like during your child�s soccer game. An unexplained death of a family member under the age of 50 is another warning sign.
How is it Diagnosed?
For most children, an electrocardiogram (ECG), evaluated by a cardiologist, is the first step to diagnose a problem with the heart. An echocardiogram (ECHO) is the next logical step.
How is it Treated?
Most children can be treated with medication called beta blockers. More severe cases are treated by a pacemaker, implanted defibrillator (ICD), or corrective surgery.
How Can We Protect Our Kids?
- Talk to your pediatrician, school faculty and coaches about the warning signs of LQTS.
- If your child faints, get an ECG and consult with a cardiologist.
- Figure out if anyone in your family has ever fainted or died suddenly before the age of 50. If so, talk to your pediatrician.
- Learn more about early childhood ECG screenings. Italy screens all newborns and Japan screens all school aged children. Could the USA do better?



