simon-yellow-shirt-smile2In 2004, a little boy named Simon Sudman was born. He weighed almost seven pounds and had an APGAR score of eight and nine. He was 50% for weight and 25% for height. Every few hours, he’d finish a bottle (except for a four-hour stretch overnight).

At seven weeks, Simon smiled for the first time. He died 47 days later.

Simon Sudman seemed to be healthy and normal. However, his little heart had an unknown defect called Long QT Syndrome, an arrhythmia.

His parents never heard of this condition. No one told them that it was responsible for up to 15% of all SIDS deaths. Simon was one of thousands of kids to die of sudden cardiac arrest in 2005. Some were babies and others were high school athletes.

After being encouraged by their pediatrician to get their hearts checked, Phyllis, Simon’s mother, learned that she also had the condition. Not wanting another parent to lose a child to a detectable heart condition, the Sudmans founded Simon’s Fund as a 501(c)(3) organization. It is dedicated to raising awareness about the conditions and warning signs that lead to sudden cardiac arrest and death in young athletes and children.

The organization provides free heart screenings to children, advocates for life-saving legislation, hosts awareness events, and promotes research.